Overview

Jointly sponsored by the National Center for Advancing Translational Sciences and Clinical Center at the National Institutes of Health (NIH), Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect and NIH research collaborations to advance new treatments.

Rare Disease Day at NIH will take place from 8:30 a.m. to 4:00 p.m. in Masur Auditorium in Building 10 on the main NIH campus in Bethesda, Maryland. The event will feature presentations, posters, exhibits, an art show and tours of the NIH Clinical Center.

Admission is free, and the event is open to the public, including patients, patient advocates, health care providers, researchers, industry representatives and government employees. In association with Global Genes®, participants are encouraged to wear their favorite pair of jeans. Be sure to follow the event on social media using #RDDNIH.

Event partners include the EveryLife Foundation for Rare Diseases, the Food and Drug Administration’s Center for Biologics Evaluation and Research, Genetic AllianceGlobal Genes®, National Organization for Rare Disordersand Uplifting Athletes.

Please note that participants may be photographed or filmed as part of the event. If you do not wish to be photographed, please indicate so on your registration form.